Dealing With Issues of Privacy

Subtitle: Part three of the COS Think-A-Thon series

Recording Date:March 12, 2022

Transcript: Download transcript here

Keywords:privacy, ethics, rights, advocacy, self-advocacy, dignity of risk, good-intentions, honoring choice, respect, independence, right to know, networks for training and development, dealing with issues of privacy

Summary: This episode tackles the issues of privacy, rights, and how this has played out in this time of Covid-19. (This broadcast is occurring in the midst of Covid, in March of 2022). People came together to brainstorm, discuss and problem solve how to deal with issues of privacy and rights in general, and specifically how these issues have played out in the midst of articles around people with disabilities, Covid-19, and access to information and vaccination.

Topical Index:

• Welcome and Introductions [00:00]
• Vaccination - the pandemic - and disability [02:21]
• What is the impact [03:16]
• Privacy vs. safety vs. respect of rights [05:47]
• Access to significant people in our lives [08:01]
• Personal protocols [10:23]
• Dignity of risk [11:32]
• Where is the line [12:28]
• Access to advocates [15:15]
• What can we do [19:22]
• • personal circle [19:49]
• • legal action [21:32]
• Exampes of successful resolution [23:02]
• • thinking of how you would feel about this situation [23:49]
• • all parties coming together as a support [25:55]
• • "give permission" for / encourage someone to express themselves [26:41]
• A different standard of "privacy" / right to know [30:02]
• • family's belief in their rights [30:51]
• • a self-advocate's perspective [33:42]
• Summing it up [42:04]
• Closing [43:25]

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